Contact clinic for details. Montreal, Quebec Durham Baltimore Age Range Seen: New patients only under 18 years age Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Administrative Coordinator: Erica Sierra To schedule an appointment, call (412) 692-5520. Director: Marcio Sotero de Menezes, MD Director: Jamie K. Capal, MD Clinic Receptionist: Moran Avraham Director: Debopam Samanta, MD Advent Health Medical Group Epilepsy at Orlando We invite you to complete this survey any time after youve been to the TSC Clinic. Multidisciplinary Tuberous Sclerosis Clinic at Ann & Robert H. Lurie Childrens Hospital of Chicago Director: Monica Cramer, DO Farmington Columbus Clinic Frequency: Weekly, every Tuesday. To schedule an appointment call (713) 500-6367. Co-Director: Amanda Pong, MD, MSc Please reach out to the Tuberous Sclerosis Complex Program clinic director or coordinator with any questions or concerns at (720) 777-6895. Clinic Ambassadors: Reiko Donatodonator@bellsouth.net Northern California TSC Clinic at Lucile Packard Childrens Hospital Four patients seen simultaneously by a group of six providers (epilepsy, neurology, cardiology, nephrology, psychiatry and psychology). To schedule an appointment call (312) 227-3540. The TS Center at New York University Langone Medical Center The TSC Alliance is in the process of phasing in new TSC Clinic Standards. Namath S. Hussain is a neurosurgeon in Loma Linda, California and is affiliated with Loma Linda University Medical Center. Co-Director: Sarah Weatherspoon, MD To schedule an appointment at the Adult TSC Clinic, call (720) 848-2087. *Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician. Age Range: Children and Adults Co-Director: Marisol Ibarra-Ramirez, MD Director: Kevin C. Ess, MD, PhD To schedule an appointment call Ashley Hamilton at (248) 551-6355. Clinic Frequency: TSC patients are seen two designated Fridays per month for pediatrics and during routine clinic days for adults. Director: Himanshu Kaulas, MD Neurology Residency. Washington University Tuberous Sclerosis Clinic Coordinator: Jennifer Graham, RN Director: Vijay Vishwanath MD PhD Clinic Frequency: Monthly, every third Tuesday (subject to change). Dr Makki has been my dr for 3-4 years and he was a godsend. Age Range Seen: Adults Atlanta Age Range Seen: Children and Adults Director: Elizabeth Thiele, MD, PhD Age Range Seen: Children and Adults Age Range Seen: Children and Adults Coordinator: Sheila Barton, RN Director: Vinodh Narayanan, MD Columbia Le who are specialists in neurology and epilepsy will refer patients to the appropriate specialists for evaluation and management of other issues related to TSC, as needed. Age Range Seen: Children and young adults up to age 21 years old For Clinic Information and to schedule an appointment call +52 8183483704. Coordinator: Sonja Steinbrueck, RN For more information or to schedule an appointment call (214) 559-7830 or emailTSCclinic@tsrh.org. Little Rock Coordinator: Alli Brougher Chaddock, BS, BSN, RN Clinic Frequency: Monthly, first Friday. Clinic Ambassador: Kathi Dills kteach599@msn.com Age Range: Children and Adults up to age 60 years. WebNeurology Residency. Your comments in this online survey will be shared with the TSC Clinic Director and staff. Gainesville Food. For Appointments and Clinic Location: If you are a parent of a child 17 years or younger call (650) 723-0993. Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. WebWe have clinics conveniently located in Loma Linda and Murrieta. Director: Andrew House, MD TSC Clinic at Sheba Medical Center To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins. Coordinator: Susan Markle, BSN, RN Clinic Frequency: Daily Clinic Frequency: Weekly Ft. Worth Coordinator: Nancy Morris, LPN Hyderabad, Telangana Clinic Frequency: Monthly The Tuberous Sclerosis Clinic To schedule an appointment for your child at the Childrens Hospital, please call (720) 777-6895. Director: Steven Sparagana, MD CHU Sainte-Justine, University of Montreal Houston Age Range Seen: Children and young adults up to age 21 years old. For Clinic Information call +917304443098. Pediatric Clinic Frequency: Weekly every Wednesday morning. Director: Lawrence Morton, MD (pediatrics) Cleveland Chapel Hill Clinic Frequency: One half-day every second Monday of the month. Tel Hashomer Hotels. Director: Iris Noyman, MD Age Range Seen: Children and Adults Click one of the following letters to be directed to the corresponding state name. To schedule an appointment, call (718) 920-4378. Shopping. Out-of-State Medicaid Policy: Requires one-time agreement with UCLA. This option minimizes wait times and gives patients all the same care and treatment as the Multidisciplinary Clinic. Coordinator: Lucie Ct RN For clinic information and to schedule an appointment call (216) 286-6644. WebFind the Best Neurologist near you in Loma Linda, CA . Co-Director: Mary Kay Koenig, MD Clinic Frequency: First Monday P.M., second Tuesday A.M., third and fifth Tuesdays P.M. every month. WebGeneral Child Neurology. Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis. Co-Director:Muhammad Zafar, MD Age Range Seen: Children and young adults up to age 30 years. Director: Samir R. Karia, MD Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Tuberous Sclerosis Clinic at Childrens National Co-Director: Siddarth Shah, MD Age Range Seen: Children and Adults Out-of-State Medicaid Policy: No restrictions. Clinic Frequency: Daily. For Clinic Information and to schedule an appointment call (514) 345-6510. David Y. Ko is a Neurologist in Loma Linda, CA. Director: Stacie Stapleton, MD Coordinator: Jacqueline Edens, RN, BSN Co-Director: Sotiris G. Mitropanopoulos, MD For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672. London Health Sciences Centre TSC Network TSC Clinic Frequency: Every first Monday and Thursday afternoon with urgent evaluations scheduled when possible. Age Range Seen: Children and Adults. For Clinic Information and to schedule an appointment call, Coordinator: Mimi Callanan, RN, MSN (Adults). WebDr. Coordinator: Dana Bridges, MSN, FNP-BC Director: Joao Garcia, MD Contact Us. St. Petersburg Coordinator: Eugenia Law, RN Out-of-State Medicaid Policy: Some states are accepted; please contact the clinic for current policy. For Clinic Information and to schedule an appointment call (519) 663-3167. Co-Director: Oded Volovelsky, MD, PhD San Diego Administrative Coordinator: Mary Jo Shirley Age Range: Adults Clinic Frequency: One Friday afternoon per month and as needed weekly at main campus or off site locations. Coordinator: Claire Sartwell, RN, BSN Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Meet Our Providers - Neurosurgery | Loma Linda University Health Make an Appointment - Neurology | Loma Linda University Coordinator: Melissa Calzada, MD Detroit Director: Mary T. Silvia, MD Coordinator: Jan Paolini, RN, MSN, PNP For information and to schedule an appointment, call (717) 531-8790. Please email clinicconcerns@tscalliance.org or call (240) 463-7250 to report any problems you encounter with the contact information posted below. For Clinic Information call (414) 266-2935 and to schedule an appointment call (414) 266-3347. Clinic Frequency: Weekly. Age Range Seen: Children and Adults Tuberous Sclerosis Clinic at Childrens Mercy Hospital Age Range: Up to age 21 years Obtenga ms informacin. Need help Age Range Seen: Children and Adults Out-of-State Medicaid Policy: Accepts Alabama and Kentucky and evaluates others on a case-by-case basis. McGovern Medical School, University of Texas Health Science Center at Houston To schedule an appointment call (404) 785-5437. Coordinator: Marsha Harp. Age Range Seen: Children and Young Adults up to age 25 years old. ^Due to overwhelming interest in our monthly multidisciplinary TSC program, we are now offering patients the opportunity to schedule with all the necessary subspecialists in individual clinics within a short time frame, possibly same-day. Age Range: Children and Young Adults. Age Range Seen: New patients under age 18 years. If you are an adult with TSC or parent of a dependent adult with TSC, call (650) 498-7551 for New Patient Appointments to be seen by Dr. Scheherazade Le. Childrens Healthcare of Atlanta Age Range Seen: Children (0-17) and adults (18+) (The TSC clinic at New York University (NYU) operates out of the NYU Comprehensive Epilepsy Center) Chicago Oakland Administrative Coordinator: Mariana Villagran Stipends & Benefits. Co-Director: Scheherazade Le, MD London, Ontario Coordinator: Adina Chirla, BSN, RN Coordinator: Maria Bonanni, MSN, CRNP and Megan Lawrence (administrative) Director: Francis DiMario, Jr., MD Clinic Frequency and location: Childrens clinic- Fourth Friday afternoons (UNC Child Neurology Clinic at Carolina Pointe II in Chapel Hill); Adult clinic- First Thursday morning (UNC Adult Neurology Clinic at Meadowmont Village in Chapel Hill) Coordinator: Mary Sheerin, RN, BSN To schedule an appointment call (410) 328-3574. Clinic Frequency: Clinic practice is to see patients as they come. Director: To be announced. Coordinator: Nicole Forster, MSc, CGC Coordinator: Sarah MacDonald, RN, BSN, CPN Coordinator: Pranathi Gutta, MBBS Dr. Porter and Dr. Co-Director: Marvin Miller, MD Director: Priyamvada Tatachar, MD TSC Clinic at Novak Center/University of Louisville Age Range Seen: New patients up to age 20 years. For clinic information and to schedule an appointment, please call (973) 322-7042. Grand Rapids The identification of a TSC Clinic or Center of Excellence does not constitute a recommendation or endorsement of any provider of medical care. Patients see Dr. Noyman on a more frequent basis. Clinic Frequency: Twice monthly on Fridays, and as needed. Dr. Werner sees all ages, however adults with commercial insurance or Medicare who have mild cognitive (i.e. Administrative Coordinator: Clara Samaniego Co-Director: Judith Adelizzi-Delaney, DNP, APRN Coordinator: Maria del Pilar Gennaro, MSN, ARNP, CNRN Co-Director: Erika Axeen, MD (Pediatrics) WebFind the Best Pediatric Neurologist near you in Loma Linda, CA . For more information about the clinic call (614) 722-4665 and to schedule an appointment call (614) 722-4625. For more information or to schedule an appointment, please call 602) 687-8555 or email info@azpediatricneurology.com. Age Range Seen: New patients up to age 21 years. Virtual options (videoconferencing, telephone) are available. Clinic Frequency: Monthly, every third Wednesday. For Clinic Information call (501) 364-4941. Coordinator: Lisa Vala, RN, BSN, REEGT Clinic Frequency: Every second Thursday. Director: Mohammed Ilyas, MD Clinic Frequency: Weekly on Mondays. To schedule an appointment call +91- 22-71222777 or +91 8291903140, Patparganj, Delhi Coordinator: Perla Bautista Muench, RN, BSN (Pediatric) Coordinator: Andrew House, MD Meet Us - Neurology Residency | Loma Linda University Health For Clinic Information and to schedule an appointment call(984) 974-7337 Director: Akira Yoshii, MD, PhD When you call the listed number for clinic information, please be sure to tell them you or your child has TSC, then specify you want to make an appointment with the doctor who is listed as the Director/Co-Director. The Hospital of the University of Pennsylvania(HUP) and Childrens Hospital of Philadelphia (CHOP) Director: Donald Phillips, MD, MPH Director: James H. Tonsgard, MD Director: Ajay Gupta, MD, FAAP Age Range Seen: Children up to age 18 years To schedule an appointment call (513) 636-0073 and speak to Steve Fordyce or emailTSclinic@cchmc.org. Director: Mark Keezer, MDCM, PhD Adults with TSC please call (206) 320-3492 to schedule an appointment with Dr. Michael Doherty. Clinic Frequency: Second Monday every month afternoon clinic. The TSC sub-specialists also see TSC patients most days of the week. Director: Monica P. Islam, MD Seattle Learn more. APNNA Arizona Pediatric Neurology & Neurogenetics Associates Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont. Clinic Frequency: Bi-weekly, first and third Wednesday of the month. At age 28 years the follow-up continues with neurologist, Dr. Mauricio Escalante. University of Iowa Hospital & Clinics Download TSC Specialist List. TSC Clinic at Arkansas Childrens For Clinic Information and to schedule an appointment call (206) 987-2078. For Clinic Information call (813) 745-3980 and to schedule an appointment call (813) 745-4251. Hackensack Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Neurology Locations Loma Linda University Faculty Medical Clinics Neurology 11370 Anderson St., Suite B100, Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC Director: Eric Sgal, MD Founding Director: David N. Franz, MD The UF Health Tuberous Sclerosis Center For clinic information and non-urgent inquiries please call the Clinic Coordinator at (410) 448-2485. Age Range Seen: Children and Adults. Age Range Seen: Children up to age 21 years old. Age Range: Children and Adult. TSC Clinic at Rainbow Babies and Childrens Hospital, University Hospitals of Cleveland Medical Center St. Louis Co-Director: Melissa Gregory, MD Director: Katherine Van Poppel, MD For more information or to schedule an appointment, contact appointment scheduling at (407) 303-8127. Clinic Frequency: One full Friday per month with additional clinics added as needed. For more information about the clinic call (901) 287-4547. Loma Linda, CA has 25 Pediatric Neurologist results with an average of 20 years of experience and a total of 106 To schedule an appointment contact Sabrina Dekel at SabrinaDe@clalit.org.il or 972-8-6245469. Director: Ana Beatriz Hinojosa-Amaya, MD Neurocutaneous Disorders Clinic at Johns Hopkins All Childrens Hospital The Tuberous Sclerosis Clinic at Loma Linda University Health Care TSC Clinic at Nemours/duPont Hospital for Children Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider. Co-Director: Elena Gonzalez, PNP, MSN Clinic Frequency: Twice monthly on selected Tuesday afternoons. Coordinator:Maha Issa-Koteira Provides emotional support to newly diagnosed people with TSC and their families. Age Range Seen: Children and adults Co-Director: Nanda Kishor Kumar Vuppali, MBBS, DCH, MRCPCH Co-Director: James W. Wheless, MD The Neurofibromatosis and RASopathy Program at Childrens Hospital of Wisconsin Physician Assistant: Sheri Escalante, PA-C Austin Clinic Frequency: Twice monthly on Thursdays. Co-Directors: E. Martina Bebin, MD, MPA and Bruce Korf, MD, PhD Director: Andy Rodriguez, MD (Adult)Co-Director: Aliza Alter, MD (Pediatric) Age Range: Children and Adult. Co-Director: Joyce Y. Wu, MD Out-of-State Medicaid Policy: Does not accept any. Director: Stephen Ashwal, MD For pediatric information and to schedule an appointment call (314) 454-6120 and ask for Ashley. Swedish Neuroscience Institute WebWe provide comprehensive pediatric neurology services, including treatment for epilepsy, traumatic brain injury, cerebral palsy and more. The TSC Alliance supports the vital role a tuberous sclerosis complex (TSC) clinic can play in improving the lives of TSC patients. Referrals to any specialist in the TSCN provides an entry point to multidisciplinary care, while undifferentiated cases can be referred to Dr. House. TSC Program Patient Navigator: Semira Kaul, RN Age Range Seen: Children and Adults St. Louis Coordinator: Mimi Callanan, RN, MSN (Adults) Age Range Seen: Children only. TSC Clinic at Northeast Regional Epilepsy Group Pittsburgh Duke Medical Center Clinic Frequency: First Tuesday of each month. To schedule an appointment at HUP, call (215) 662-4740. To schedule an appointment call (901) 287-7491. IQ is 70 or higher) or psychiatric issues and are able to complete neuropsychological testing may schedule an appointment withAndrew Liu, MD, MS. Dr. Liu has clinic weekly, Monday through Wednesday, with 5 new slots designated per month to see adults with TSC. Range Seen: Children and adults Our neurology residency program provides an outstanding training program in clinical neurology. Often undetected. None of the information provided by TSC Alliance, including the identification of TSC Clinics or TSC Centers of Excellence, is intended as medical advice and should not be relied upon as a substitute for professional consultation with a qualified healthcare provider familiar with a patients medical needs. WebDr. Coordinator: Kari Privette, RN Coordinator: Debbie Ruckman, RN, BSN, CPN, Telephone: 773-834-1927 TSC Clinic at University of Illinois at Chicago You can also find other Medical Centers on MapQuest Director: Pradnya Gadgil, MBBS, MRCPCH Co-Director: Surya Prasadarao Rednam, MD, MS Age Range Seen: Adults 18 years and older. Clinic Frequency: Monthly (Schedule subject to change). Director: Pavel Klein, MD Hadassah TSC Clinic Faculty and residents work closely Co-Coordinators: Liberty Taeger and Lauren Siebrase-Wilkes, MSN, FNP-C