This is because health care data are subject to more personal privacy than other general information [10]. Impact Factor 2017: 1.787. J Med Ethics 2011 Jan;37(1):50-55 [, Agaku IT, Adisa AO, Ayo-Yusuf OA, Connolly GN. Introduction From 1990-2010, worldwide child mortality declined by 43%, and maternal mortality declined by 40%. Maternal and Child Health Journal is the first exclusive forum to advance the scientific and professional knowledge base of the maternal and child health (MCH) field. Back-Translation for Cross-Cultural Research. The Social Determinants of Health (SDOH) are the conditions in the environments . J Biomed Inform 2019 Jul;95:103222-103210 [, Zhu P, Shen J, Xu M. Patients' Willingness to Share Information in Online Patient Communities: Questionnaire Study. Considering the sample balance and dropout, a minimum sample size of 1600 should be used for this study to obtain adequate statistical power by collecting 800 questionnaires from the tertiary hospital and 200 questionnaires from each of the 4 secondary hospitals. Year. Sharing medical data for health research: the early personal health record experience. Call for Papers | International Journal of Maternal and Child Health The latent variables privacy concern, monetary benefit, and perceived effectiveness of government regulation are used to assess perceived risk, while the latent variables information control, moral motive, and trust are used to measure perceived benefit. More longitudinal research is needed to unveil the importance of early-life microbiota on the future health of the infant. Understanding Public Attitudes and Willingness to Share Commercial Data for Health Research: Survey Study in the United Kingdom. Yuan R, May 2020, issue 5. The Journal is interested in original research in the area of maternal and child health, both within the US and from other countries. J Med Ethics 2022 Jan;48(1):3-13 [, Dinev T, Bellotto M, Hart P, Russo V, Serra I, Colautti C. Privacy calculus model in e-commerce a study of Italy and the United States. Eisenberger et al [17] proposed the concept of social reward based on subjective norms, which is the material reward or spiritual fulfillment that an individual receives after performing a specific behavior. Through this web page, researchers can check the impact factor, total citation, journal quartile, and journal aim & scope. Journal of Consumer Affairs 2007 Mar 6:100-126 [, Factors Influencing the Sharing of Personal Health Data Based on the Integrated Theory of Privacy Calculus and Theory of Planned Behaviors Framework: Results of a Cross-Sectional Study of Chinese Patients in the Yangtze River Delta, Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (446), Adoption and Change Management of eHealth Systems (502), https://preprints.jmir.org/preprint/46562, Jingjin This paper contributes to expand the literature on patient privacy concerns and willingness to share personal health data by integrating the Theory of Planned Behavior and the Theory of Privacy Calculus. Telematics and Informatics 2017 Nov;34(7):1038-1058 [, Norberg P, Horne D, Horne D. The Privacy Paradox: Personal Information Disclosure Intentions versus Behaviors. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included. Future studies may use a factorial design to explore mediators between intention and behavior gaps and how these affect perceptions of sharing personal health information. In previous studies in areas such as e-commerce [4], social networks [5], internet of things [6], and wearable devices [7], it has been demonstrated that the perception of benefits can have a significant positive impact on the willingness to provide data. International Journal of Environmental Research and Public Health is an international peer-reviewed open access semimonthly journal published by MDPI. Front Public Health 2018;6:149 [, Moore GC, Benbasat I. iPEGR: perceived effectiveness of government regulation. Maternal Health, Neonatology and Perinatology | Home page It has been demonstrated that subjective norm is one of the influencing factors that promote data sharing and positively affect users willingness to use new information systems [16]. Practical guidelines are provided to health policy makers and health care practitioners to encourage patients to share their personal health information. Unsound laws and regulations, lack of specific health information standards, inappropriate management and publicity, privacy leakage, and information security risks lead to low willingness of the public to share. Interconnecting health care data is impossible without the technical support of hospital informatization, and accordingly, different levels of informatization result in different patient experiences and levels of satisfaction. Journal of Maternal and Child Health (JMCH) is an international peer-reviewed, open access journal in the field of maternal and child health. January 2021, issue 1. 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The impact score (IS) 2022 of MCN The American Journal of Maternal Child Nursing is 1.38, which is computed in 2023 as per its definition.MCN The American Journal of Maternal Child Nursing IS is increased by a factor of 0.58 and approximate percentage change is 72.5% when compared to preceding year 2021, which shows a rising trend. A chi-square test was used to analyze the sharing willingness of all control variables. lThe diagonal italicized numbers are the square root of the average variance extracted for each construct. A total of 2400 questionnaires were distributed, and 2060 questionnaires collected were valid (response rate: 85.83%). Please refer to the full text here. Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users. Ji, Guangjun Yu G Factors Influencing the Sharing of Personal Health Data Based on the Integrated Theory of Privacy Calculus and Theory of Planned Behaviors Framework: Results of a Cross-Sectional Study of Chinese Patients in the Yangtze River Delta J Med Internet Res 2023;25:e46562 doi: Furthermore, the health information infrastructure platform has now been enhanced in China, while population health information standards have been revised and security and protection systems have been improved. In the final model, all path coefficients between measured variables and factors were significant (2-tailed; P<.05). These measures indicate that the convergent validity of the measurement model was acceptable. It has been demonstrated that trust can significantly increase users perceptions of benefits and decrease perceived risks in the use of novel technologies [16]. aBased on the results of the questionnaire, the mean of the willingness to share was 3.496, the SD was 0.764, and the median was 3.50. Shi, Rui Current Issue (April - December 2015) Indian Journal of Maternal and Child Health Volume 17, April - December 2015 Further, based on the sample size requirements for exploratory factor analysis and structural equation modeling statistical analysis, it is recommended that the sample size is 5-10 times greater than the number of measurements items, and should not be less than 150, and the larger the sample, the better [29]. Maternal and Child Health Journal - Impact Factor & Score 2023 Hence, this study argues that it is also applicable to the study of willingness to share data in health care. Maternal and Child Health Journal - ResearchGate Journal of Marketing Theory and Practice 2014 Dec 08;19(2):139-152 [, Burns KE, Duffett M, Kho ME, Meade MO, Adhikari NK, Sinuff T, ACCADEMY Group. International Journal of Maternal and Child Health and AIDS The guidelines provide a 22-item checklist outlining standards (eg, title, abstract, introduction, methods, results, discussion, and funding) to ensure that observational studies are systematically conducted and reported (Multimedia Appendix 1). Res Nurs Health 2006 Oct;29(5):489-497 [, Brislin RW. from choosing a journal and section to preparing your manuscript. As this is a cross-sectional study, the sample size was calculated using the following formula [28]: According to the above formula for the sample size of the cross-sectional study, where t=1.96 and =.05, P=.50 was assumed because there is currently no reliable estimate of the percentage of patients in China willing to share health information, as the overall variance is the greatest at this time. Employment in the health care sector, experience with EHRs, understanding of the benefits of sharing health data, and awareness of potential risks all affect patients willingness to share their EHR data [9]. J Oncol 2022 Aug 11;2022:5280792-5280798 [, Mhlmann L, Schee Gen Halfmann S, von Wyl A, Brand A. Attitudes towards Personal Genomics and Sharing of Genetic Data among Older Swiss Adults: A Qualitative Study. Indian Journal of Child Health | Impact Factor | Indexing For the Cronbach if item was deleted condition, there was a significantly smaller value than the Cronbach , value indicating that the item should not be deleted. Convergent validity can be tested by examining the standardized factor loading, composite reliability, and average variance extracted (AVE). A peer-reviewed, open access journal in infant and child health, hiv/aids, global health, health disparities, maternal health & adolescent health. Only Open Access Journals Only SciELO Journals Only WoS Journals It is widely used by scholars in various countries for privacy disclosure or information sharing research [1]. Open Access Peer-reviewed Research Article Effective interventions to ensure MCH (Maternal and Child Health) services during pandemic related health emergencies (Zika, Ebola, and COVID-19): A systematic review Subrata Kumar Palo, Shubhankar Dubey, Sapna Negi, Mili Roopchand Sahay, Kripalini Patel, Swagatika Swain, Bijaya Kumar Mishra, If the same upward trend persists, impact score may rise in 2023 as well. International Journal of Maternal and Child Health (MCH) and AIDS Medical records that guide and teach. Journal of Management Information Systems 2014 Dec 08;26(3):135-174 [, Chiou A, Chen JV, Bisset C. Cross Cultural Perceptions on Privacy in the United States, Vietnam, Indonesia, and Taiwan. The platforms of various hospitals are largely constructed independently and have mixed quality because there are no unified standards for health information sharing. Computers & Security 2017 Jan;64:122-134 [, Barth S, de Jong M. The privacy paradox Investigating discrepancies between expressed privacy concerns and actual online behavior A systematic literature review. Intention to disclose personal information via mobile applications: A privacy calculus perspective. The left axis depicts the number of papers published in years X-1 . To determine participants intention to share their personal health data, we conducted a stepwise logistic regression analysis based on their demographics and health-related characteristics. The differences in perceived risk may be attributed to the particular results of this latent variable within the health care context, or the fact that data sharing involves different types of information [53], or different kinds of respondents, or they may also be explained by the fact that perceived risk and willingness to share are mediated by other variables [1] that need to be investigated further in-depth in the future. Effects of Privacy Policy and Government Regulation on Trust of Consumers in Saudi Arabia: An Empirical Study. The partial least squares approach for structural equation modeling. Information Systems Research 2006 Mar;17(1):61-80 [, Awad, Krishnan. Front Pediatr 2021 Oct 18;9:745687-745610 [, Stunkel L, Grady C. More than the money: a review of the literature examining healthy volunteer motivations. Maternal & Child Nutrition is inviting submissions of manuscripts for an upcoming Special Issue to address gestational weight gain in China. In China, health care data are in the initial stage of development, and medical institutions control the majority of patients health care data, which are highly valuable for exploitation. A 2-step approach was used for the structural equation modeling. In the current turbulent environment in which industry regulation is still imperfect and hospitals are unable to fully ensure the security of patient information and provide adequate privacy protection, government regulations can provide safeguards for patients who are subjected to privacy violations [25]. Substituting these values into the equation yields an initial sample size of N=1.96 1.96 0.5 (10.5)/(0.05 0.05)=384, which when combined with a response rate of approximately 50% from relevant studies yields the sample size in each hospital to be 384/0.5=768. Hence, this measurement instrument achieved adequate convergent validity and discriminant validity. AN, Li Y. The more positive the attitude, the stronger the subject norms and perceived behavioral control and the stronger the willingness to perform a specific behavior [15]. The journal began its publication on January, 2016, and was published four times yearly. Impact Factor (IF) Total Articles. Mark. Total Cites. Investigation and analysis of privacy protection for electronic health records in China-from the perspective of the public. Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing. The paths that are unreasonable or do not reach the significant level were modified based on theoretical basis: 2 paths predicting sharing willingness from perceived effectiveness of government regulation and moral motive were removed, and 1 path predicting perceived benefit from information control was added. A total of 2060 completed questionnaires were received (response rate: 2060/2400, 85.83%). The willingness to assume the risks and harms that may result from the sharing of personal health data because of a belief that the person with whom the data are shared will take protective measures. Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study. Maternal and Child Health Journal is listed in a wide variety of abstracting and indexing datasets like Scopus, Web of Science and Research.com. Medical services and health management have become increasingly dependent on information technology, and it has become a trend for patients to share their personal health information with health care providers via wearable devices and internet-based platforms. Similarly, Chinese researchers found that people who have never used online health care services are more likely to provide personal information to access these services [41]. Content validity and interrater reliability were established. The Theory of Privacy Calculus is considered to be the most practical theory for analyzing the personal privacy and security of information system users. If the perceived benefits of sharing personal information are greater than the perceived risks, then data sharing behavior will be rationally achieved at the expense of partial privacy [3]; however, if the perceived benefits are less than the perceived risks, services will be suspended to avoid the risk of personal privacy leakage. Factors Contributing to Maternal and Child Mortality Reductions - PLOS To our knowledge, only a few previous studies have integrated the Theory of Planned Behavior with the Theory of Privacy Calculus as their research framework [5]. Patients must consent to the sharing of their data, and the policy should ensure that all information is shared transparently and completely. Informed consent was obtained from all participants in the primary data collection, and the original informed consent allows the secondary analysis without additional consent. Int J Med Inform 2016 Apr;88:8-17 [, Wang T, Duong TD, Chen CC. Int J Med Inform 2018 Feb;110:98-107 [, Shi J, Yan X, Wang M, Lei P, Yu G. Factors Influencing the Acceptance of Pediatric Telemedicine Services in China: A Cross-Sectional Study. Demographic variables assessed in this study were gender, age, educational level, hospital level, household income, place of residence, perceived health status, online medical service usage (years), and experience. Patient/family views on data sharing in rare diseases: study in the European LeukoTreat project. In scientific research situations, researchers frequently compensate patients who agree to participate in research and disclose their health information. After eliminating incomplete and invalid questionnaires, a sample of 2060 valid questionnaires was finally collected. Participants reported their responses on a 5-point Likert scale ranging from 1 (completely disagree) to 5 (completely agree). As shown in Table 2, female patients accounted for 78.40% (1615/2060) of the total, age range was mainly 31-40 years (972/2060, 47.18%), education was mainly undergraduate (918/2060, 44.56%), and self-assessed health status was good (1238/2060, 60.09%). The Theory of Privacy Calculus is a typical behavioral model extension, and this study considers data sharing as a cost-benefit analysis behavior that explores individuals attitudes and behaviors when facing privacy and security issues [2]. The impact of the COVID-19 pandemic on maternal and perinatal health: a Hershey, PA: IGI Global; 2012:727-741, Esmaeilzadeh P. The impacts of the privacy policy on individual trust in health information exchanges (HIEs). Some factors that increase a woman's risk for maternal morbidity and mortality include the following 1: Existing or pre-pregnancy health conditions, such as cardiovascular disease, obesity, asthma, or a compromised immune system Older maternal age Lifestyle factors, such as being a current or former cigarette smoker Third, individual private information, including date type, data purpose, and demographics (eg, names, ID numbers, correspondence, occupation, household income) should be deidentified to enhance the trust of patients in health care organizations. Inf Syst Front 2017 Feb 3;19(4):753-767 [, Shibchurn J, Yan X. Journal of Cross-Cultural Psychology 2016 Jul 27;1(3):185-216 [, Hair JF, Ringle CM, Sarstedt M. PLS-SEM: Indeed a Silver Bullet. Lauren M Irvine and Deborah L Harris Review 1 June 2023 Benefits of maternally-administered infant massage for mothers of hospitalized preterm infants: a scoping review 10.2196/46562 Computers in Human Behavior 2015 Mar;44:103-117 [, Hsu CL, Lin JCC. Journal of Medical Internet Research - Factors Influencing the Sharing The Journal turns 100 years old. In Table 1, definitions and sources are presented for each construct based on prior research. The degree of remuneration and material satisfaction that sharing personal health data can bring, such as subsidies. Computer Law & Security Review 2012 Jun;28(3):308-319 [, Xu H, Teo H, Tan BCY, Agarwal R. The Role of Push-Pull Technology in Privacy Calculus: The Case of Location-Based Services. It aims to improve policy, service, programs, and practice in maternal and child health in low- and middle-income countries through providing a forum for publishing high-quality research for policymakers . As part of the effort to promote the rapid development of health care, data producers are required to provide health care data for scientific research and clinical practice. To determine whether the correspondence between constructs and items was consistent with the research hypothesis, factor rotation was conducted according to the maximum variance method based on the criteria of characteristic roots greater than 1. February 2022, issue 2. Public attitudes to the use in research of personal health information from general practitioners' records: a survey of the Irish general public. Moral motive (=.803, P<.001), perceived benefit (=.123, P=.04), and perceived effectiveness of government regulation (=.110, P=.001) had a significantly positive association with sharing willingness, while perceived risk (=.143, P<.001) had a significant negative impact, with moral motive having the greatest impact. Additionally, governments should promote laws and regulations regarding data privacy, clarify privacy data definitions, and define users rights and responsibilities. 37410526, Copyright This study has several limitations that should be addressed. All the diagonal values are greater than 0.7 and exceed the correlations between any pair of constructs [37]. As the public becomes more aware of privacy and security, their willingness to share health care data must be addressed. In terms of hospital level, 45.92% (946/2060) of participants visited secondary hospitals and 54.07% (1114/2060) visited tertiary hospitals. Item-scale correlation coefficient and CITC values were all greater than 0.4 and significantly different (Table 5), indicating that the measurement instrument has good reliability and can be analyzed in the next step [34,35]. Indian Journal of Maternal and Child Health A PEER REVIEWED ONLINE PUBLICATION Indexed in POPLINE Read More. It has been found that moral motive, perceived benefit, and perceived effectiveness of government regulation have a significant positive effect on sharing willingness, and perceived risk has a significant negative effect. Other demographic characteristics, such as age, gender, education level, income, perceived health status, or place of residence, do not affect willingness to share health information. Qiu J, Methods: A research framework based on the Theory of Privacy Calculus and the Theory of Planned Behavior was developed and empirically tested through a cross-sectional field survey from September 2022 to October 2022 in the Yangtze River Delta region, China. This graph shows how the impact factor of Maternal and Child Health Journal is computed. Archives Science Study 2019;6:66-71 [, Entzeridou E, Markopoulou E, Mollaki V. Public and physician's expectations and ethical concerns about electronic health record: Benefits outweigh risks except for information security. Table 7 shows that all the heterotrait-to-monotrait ratio values are below the strict threshold of 0.85, which allows the establishment of discriminant validity [38]. Descriptive analysis of measurement instrument. 6.7.2023 Wang, Jun January 2022, issue 1. February 2021, issue 2. Numerous studies in the fields of e-commerce [11], social networks [12], location-based services [13], and scientific data sharing [14] have confirmed a significant negative relationship between perception of risk and willingness to share. MATERNAL AND CHILD HEALTH JOURNAL impact factor The journal encourages submissions from the research community where emphasis will be placed on the originality and the practical impact of the reported research. Contemp Clin Trials 2011 May;32(3):342-352 [, Bhatia J, Breaux TD. Third, a self-report of willingness to share was assessed in this study, therefore there may have been a social desirability bias occurring. The structural equation modeling analysis results provided empirical support for the proposed model. As indicated in the Theory of Privacy Calculus, when participants are aware of the explicit benefits of an activity, their perception of the associated risks decreases, and as a result, their behavior changes. Experiences of sharing personal health data for scientific research. . International Journal of Maternal and Child Health and AIDS (IJMA) Every item was evaluated by each expert on a scale to determine whether it was congruent (or relevant) to the construct. Maternal and Child Health | Global Health Journal Search The average congruency percentage was 94%, exceeding 90% [30]. The Theory of Planned Behavior is one of the most widely used psychosocial models for predicting and explaining intentions and behaviors. It was established in 1997 and is published by Springer Science+Business Media. An empirical examination of consumer adoption of Internet of Things services: Network externalities and concern for information privacy perspectives. Description: Journal of Maternal and Child Health (JMCH) is an electronic, open access peer-reviewed journal that publishes research articles on a broad range of topics related to maternal and child health. Start your submission and get more impact for your research by publishing with us. Previous studies have confirmed that privacy concerns have a positive effect on perceived risk and have a negative effect on willingness to share [23,24]. Journal of Maternal and Child Health Background: The health care system in China is fragmented, and the distribution of high-quality resources remains uneven and irrational. Journal ISSN: 1092-7875. The data sets from the questionnaires generated and analyzed during this study are not publicly available due ethical concerns but are available from the corresponding author on reasonable request. The reliability and validity of the measurement model were examined in the first step, and the path analysis was tested in the second step. Effective interventions to ensure MCH (Maternal and Child Health - PLOS Journal Abbreviation: MATERN CHILD HLTH J. available at, Widjaja A, Chen J, Sukoco B, Ha Q. Vol 25 Aims and scope. The final measurement instruments used in this study are presented in Multimedia Appendix 2. The exclusion criteria were as follows: (1) having a mental disorder that prevented normal communication and (2) refusing to participate in this investigation. The subjective possibility of sharing or planning to share personal health care data. The latest impact factor of MATERNAL AND CHILD HEALTH JOURNAL and all the other SCI journals was released on 30th June 2022 by Clarivate. Maternal & Child Nutrition - Wiley Online Library Frontiers in Global Women's Health | Maternal Health As shown in Table 6, the main diagonal elements in italics denote the square roots of the AVEs, and the off-diagonal values represent the correlation coefficients between the constructs. . It is therefore necessary to promote transparency and public awareness about the policies governing data privacy protection, as well as reducing public concerns concerning the leakage of sensitive health data. Eur J Hum Genet 2016 Mar 17;24(3):338-343 [, Goodman D, Johnson CO, Bowen D, Smith M, Wenzel L, Edwards K. De-identified genomic data sharing: the research participant perspective. J Am Med Inform Assoc 2014;21(2):374-378 [, Spencer K, Sanders C, Whitley EA, Lund D, Kaye J, Dixon WG. Decision Support Systems 2011 Apr;51(1):42-52 [, Enke N, Thessen A, Bach K, Bendix J, Seeger B, Gemeinholzer B. Journal Rankings on Pediatrics, Perinatology and Child Health Maternal postpartum depression: risk factors, impacts, and About Journal : Indian Journal of Child Health (IJCH) is a monthly, international, peer-reviewed journal published by Atharva Scientific Publications, Bhopal, India.. IJCH is both online and print, open access journal and it allows free access to its contents and permits authors to self-archive the final accepted version of their articles.